A 23-year-old woman from Saguenay suffers from a very rare syndrome, postural orthostatic tachycardia syndrome, also known as gravity allergy.
After her diagnosis, Emily Bergeron’s life was turned upside down.
“I always feel like this in the morning, like I’ve come back from outer space, I feel like I’m 80 years old, my head wants to wake up, but my body doesn’t,” she said. .
When she doesn’t have much energy, she experiences fits of convulsions and loses consciousness.
Often hospitalized, the young woman has known her diagnosis for three years and has been followed in Montreal since May.
“When I come to the emergency room, no one knows what my syndrome is,” the young woman said.
After graduating from nursing college, she had to quit her job. These university courses have been shelved.
“It’s like I’ve seen my life differently, looking at myself and saying to myself that it’s not me. It’s sad, I’ve always played sports and my dream was to be a nurse. I have always had big dreams. “I can’t make the bed now,” she said.
Emily takes ten pills every day, but her seizures are frequent. She wants to make people aware of her syndrome so it is better known.
A friend of his created the campaign Crowdfunding. She wants to see a medical specialist in Calgary who can prescribe appropriate medication that can improve her quality of life.
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