February 23, 2024

La Ronge Northerner

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'I'm Disappointed': Alzheimer's Sufferer Sandra Demontigny Fears Medical Aid Delays in Dying

'I'm Disappointed': Alzheimer's Sufferer Sandra Demontigny Fears Medical Aid Delays in Dying

People suffering from degenerative diseases who want to seek medical help before death should again be patient.

• Read more: A promising new treatment for early-onset Alzheimer's disease

• Read more: Medical aid in dying: Woman with Alzheimer's fear 'sticks to her body'

• Read more: Early Alzheimer's disease: Give us early medical aid in dying

A new deadlock between Quebec and Ottawa on the law affects many patients, including Sandra Demonticini, a Quebecer with early-onset Alzheimer's who has been campaigning on the issue for years.

“It's coming for me, I'm disappointed,” says Sandra Demontighini, who doesn't hide her disappointment at the early medical assistance to die between Quebec and Ottawa.

At 44, she still fears that these delays may no longer accept her and others.

“All these years we have worked with the provincial government, have we achieved this? “I don't know if I'm not remembering, but we never talked about the Federal Criminal Code, which is going to stop everything,” exclaims one with advanced disease.

Sandra Demontini had to resign herself to move into a private nursing home in Lewes. A few boxes are still unopened.

She doesn't want to be a burden to her family. Her new shelter provides security for her loved ones so that she can receive care at any time.

“With my former career and my children, it's a grieving process,” she declares.

He chats with some white-haired residents in the apartment's living room about this new timeline.

Because there is a gap between Quebec law and federal law on advance claims for people with serious and incurable diseases like Alzheimer's. Federal law does not allow them to be premature. Doctors may therefore be subject to criminal prosecution.

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“Should I go to Europe or get medical help in Quebec, but too soon?”

Sandra weighs her options, initially living with Alzheimer's for 5 years and watching her father suffer.

Watch the video above to watch the full report.